May 4, 2019, 9am-1pm
Windrush Farm, North Andover, MA
The Cardiac Neurodevelopmental Program is excited to announce our second annual CNP's Spring Day at the Farm! We are inviting children with complex congenital heart disease and their parents to join us for a day of horseback riding, horse grooming, crafts, and lunch. This event is for children with complex congenital heart disease, ages 1-10, accompanied by their parents/guardians. Since there are limited openings, this event is restricted to children with complex CHD, and we are not able to include healthy siblings or children with mild heart disease at this time. Please email Latara Owens at email@example.com to register, and with any questions or concerns.
Two or six mile walk to benefit Boston Children's Hospital
Sunday June 9th 2019 9am
DCR Hatch Shell
Every dollar raised through the Eversource Walk for Boston Children's Hospital fuels the exceptional care and groundbreaking research that gives hope to every child and family who walks through our doors.
Join more than 5,000 friends, families and employees of Boston Children’s in raising funds to help give every child a healthy future, then celebrate with us on Sunday, June 9th at the DCR Hatch Shell in Boston with a fun-filled walk around the Charles River. Enjoy family-friendly activities, a cookout, entertainment and more.
Make a difference in the lives of the kids and families we serve.
For more information or to register please visit:
Join us for our Families Helping Families Gala to support children and families facing congenital heart disease.
Sat, September 22, 2018 6:30 PM – 11:00 PM EDT
Granite Links Golf Club 100 Quarry Hill Drive Quincy, MA 02169
Join other parents and professionals who care for children with complex congenital heart disease (CHD) for the second annual Cardiac Neurodevelopmental Family Symposium at Boston Children's Hospital. Through lectures and workshops with leading experts in the field of cardiac neurodevelopment, new and returning participants will learn about the risks facing children with complex CHD, and they will develop strategies to manage those risks. Topics will include managing anxiety, feeding and sleeping problems, supporting executive function, working with public schools, and genetics. This year will feature more workshops, and more opportunities for choice and specialization, including interest group lunches facilitated by Cardiac Neurodevelopmental Program staff. This year's content is all new, and we encourage last year's attendees to join us again for this day of learning.
Saturday, October 20, 2018 8:30am-5pm
The Inn at Longwood Medical 342 Longwood Avenue Boston, Massachusetts 02115
Upon completion of this activity, participants will be able to:
This course is intended for parents and caregivers of children with CHD, including: physicians, psychologists, nurses, nurse practitioners, teachers, early intervention specialists, speech and language pathologists, physical therapists, and occupational therapists. This course will be relevant to professionals who specialize in cardiology, family medicine, healthcare education and leadership, neurology, pediatrics and adolescent medicine, psychiatry, psychology, and mental health.
Janice Ware, PhD
Caitlin Rollins, MD
Catherine Ullman Shade, PhD, MEd
Hosted by Its My Heart New England
Saturday, May 5 at 8:00 AM - 4:00 PM EDT
450 Totten Pond Rd, Waltham, Massachusetts 02451
Join It's My Heart New England and Adults Living with CHD of Massachusetts, with the support of Adult Congenital Heart Association (ACHA) and Mended Little Hearts of Boston as we host another Congenital Heart Defect education conference you won't want to miss!!
This one-day education conference will start with a look into recent developments in CHD care and treatment. We will also have sessions on exercise, nutrition, electrophysiology, psycho-social and coping strategies, liver issues post-Fontan, empowering stories, transition to adult care, and an adult CHD panel focusing on self-care. We will also host a variety of vendors with resources for the CHD community.
Speakers include Drs. Ram Emani, Edward P Walsh, and Fred Wu from Boston Children's Hospital, Dr Ami Bhatt from MGH, as well as Dr. Jonas Bromberg, Disty Pearson (BACH), and a panel of 5 adult CHD survivors including Diane Pucci, Ryan Joy, and James McNulty.
Registration will open soon!!
Children are welcome. Adult admission for Saturday's conference includes certified babysitting services with activities and crafts.
Great room rates are available at the hotel. Scroll to the bottom of the website for more details and to reserve under our room block.
We also have some great sponsor and vendor opportunities still available. For more information, e-mail firstname.lastname@example.org
Check out the Facebook Event Page here!
Support Our Team, Mended Little Hearts of Boston
Sunday, June 10, 2018
Why We Walk
We're fundraising on behalf of Boston Children's Hospital because:
WE BELIEVE no parent should experience the loss of a child.
WE BELIEVE no sibling should have to watch their brother or sister suffer.
WE BELIEVE that by investing in the best doctors and scientists we can save lives -today!
WE BELIEVE that donations received before today helped a child we love and
WE BELIEVE that every dollar we raise for Boston children's Hospital will have a ripple effect and could be THE dollar that changes everything for a future family in crisis.
Please consider a donation to support our fundraising efforts... because WE KNOW that when we band together, WE WILL help fund Boston Children's exception care and groundbreaking research that can help every child.
Support the hospital by joining our team or making a gift to one of our team members.