Families Helping Families Gala-Ethan M. Lindberg Foundation

Join us for our Families Helping Families Gala to support children and families facing congenital heart disease.


Sat, September 22, 2018 6:30 PM – 11:00 PM EDT

Granite Links Golf Club 100 Quarry Hill Drive Quincy, MA 02169

For more information please visit: https://www.eventbrite.com/e/families-helping-families-gala-tickets-and-sponsorships-tickets-45939415027

Cardiac Neurodevelopmental Family Symposium

Join other parents and professionals who care for children with complex congenital heart disease (CHD) for the second annual Cardiac Neurodevelopmental Family Symposium at Boston Children's Hospital. Through lectures and workshops with leading experts in the field of cardiac neurodevelopment, new and returning participants will learn about the risks facing children with complex CHD, and they will develop strategies to manage those risks. Topics will include managing anxiety, feeding and sleeping problems, supporting executive function, working with public schools, and genetics. This year will feature more workshops, and more opportunities for choice and specialization, including interest group lunches facilitated by Cardiac Neurodevelopmental Program staff. This year's content is all new, and we encourage last year's attendees to join us again for this day of learning.


Saturday, October 20, 2018 8:30am-5pm

The Inn at Longwood Medical 342 Longwood Avenue Boston, Massachusetts 02115

LEARNING OBJECTIVES

Upon completion of this activity, participants will be able to:

  • Explain several of the neurodevelopmental risks associated with complex congenital heart disease
  • Explain why heart disease can affect brain development
  • Describe several strategies and services that can help to mitigate neurodevelopmental challenges in children with CHD
  • Explain how, within their own practice or family, they can assess neurodevelopmental risk, and seek appropriate neurodevelopmental care for a person with CHD

TARGET AUDIENCE

This course is intended for parents and caregivers of children with CHD, including: physicians, psychologists, nurses, nurse practitioners, teachers, early intervention specialists, speech and language pathologists, physical therapists, and occupational therapists. This course will be relevant to professionals who specialize in cardiology, family medicine, healthcare education and leadership, neurology, pediatrics and adolescent medicine, psychiatry, psychology, and mental health. 

COURSE DIRECTORS

Janice Ware, PhD 

Caitlin Rollins, MD 

Catherine Ullman Shade, PhD, MEd

Care, Hope, Discover 2018

Hosted by Its My Heart New England


Saturday, May 5 at 8:00 AM - 4:00 PM EDT

450 Totten Pond Rd, Waltham, Massachusetts 02451

Join It's My Heart New England and Adults Living with CHD of Massachusetts, with the support of Adult Congenital Heart Association (ACHA) and Mended Little Hearts of Boston as we host another Congenital Heart Defect education conference you won't want to miss!!

This one-day education conference will start with a look into recent developments in CHD care and treatment. We will also have sessions on exercise, nutrition, electrophysiology, psycho-social and coping strategies, liver issues post-Fontan, empowering stories, transition to adult care, and an adult CHD panel focusing on self-care. We will also host a variety of vendors with resources for the CHD community.

Speakers include Drs. Ram Emani, Edward P Walsh, and Fred Wu from Boston Children's Hospital, Dr Ami Bhatt from MGH, as well as Dr. Jonas Bromberg, Disty Pearson (BACH), and a panel of 5 adult CHD survivors including Diane Pucci, Ryan Joy, and James McNulty.

Registration will open soon!!

Children are welcome. Adult admission for Saturday's conference includes certified babysitting services with activities and crafts.

Great room rates are available at the hotel. Scroll to the bottom of the website for more details and to reserve under our room block.

We also have some great sponsor and vendor opportunities still available. For more information, e-mail organizer@carehopediscover.com

Check out the Facebook Event Page here!

2018 Eversource Walk for Boston Children's Hospital

Support Our Team, Mended Little Hearts of Boston


Sunday, June 10, 2018

Why We Walk

We're fundraising on behalf of Boston Children's Hospital because:

WE BELIEVE no parent should experience the loss of a child.

WE BELIEVE no sibling should have to watch their brother or sister suffer.

WE BELIEVE that by investing in the best doctors and scientists we can save lives -today!

WE BELIEVE that donations received before today helped a child we love and

WE BELIEVE that every dollar we raise for Boston children's Hospital will have a ripple effect and could be THE dollar that changes everything for a future family in crisis.

Please consider a donation to support our fundraising efforts... because WE KNOW that when we band together, WE WILL help fund Boston Children's exception care and groundbreaking research that can help every child.

Support the hospital by joining our team or making a gift to one of our team members.

Support Here!

How to Help

Mended Little Hearts relies on the support of individuals, corporations and foundations to help us provide hope and support to thousands of children with congenital heart defects and their families and caregivers

Amazon Smile

If you shop on Amazon.com, please consider shopping through Amazon Smile, which donates 0.5% of all sales to MLH!